Category Archives: Stigma

The true story behind the AIDS documentary 5B

From People.com

This was a time when people weren’t even touching patients with HIV,” says Priyanka Chopra, a prominent supporter of the film on behalf of the AIDS charity RED, which will receive 30 percent of all box office proceeds. “They would lay in their soiled bedsheets for days where nobody would come and even enter their room to feed them. At that time, these nurses chose to not think about whether they would live or die and actually the nobility of the profession is what you see in this movie.”

The film, which received a four-minute standing ovation at the Cannes Film Festival last month, features the nurses of ward 5B at San Francisco General Hospital who didn’t allow societal ignorance, prejudice and fear curtail their drive to administer compassionate health care to patients who had otherwise been cast aside. These were patients who most health care professionals wouldn’t touch without wearing gloves, even a hazmat suit.

Read the full article.

 

Pride month includes HIV Long-Term Survivors Awareness Day

From the Human Rights Campaign

As we celebrate Pride Month, it is also important that we honor those in the LGBTQ community who are long-term survivors living with HIV. June 5 was chosen as HIV Long-Term Survivors Awareness Day to mark when the first case of AIDS was reported in the U.S. in 1981.

Long-time HIV survivor Elder Claude Bowen, M.Div

At the time, a person diagnosed with HIV or AIDS could expect to live only one to two years after that diagnosis. In the four decades since, more than 70 million people have been diagnosed with HIV worldwide and approximately 35 million people have died, according to the World Health Organization. People age 55 and older make up 26% of all Americans living with HIV, according to the Centers for Disease Control and Prevention.

In recent years, the LGBTQ community has benefited from biomedical interventions such as Pre-exposure prophylaxis (PrEP), a medication that prevents HIV when taken as prescribed. Yet, this medication is not always accessible to those most at risk for HIV, including Black and Latinx gay, bisexual and transgender people.

HRC spoke with three long-term survivors living with HIV to learn their stories.

See the interviews on the HRC Website.

HIV isn’t just a gay issue, it’s a ‘social justice issue’

From out.com...

Writer and activist George M. Johnson instructs us, on National Black HIV/AIDS Awareness Day, on the role we all play in the search for a cure.

BY TRE’VELL ANDERSON

George M. Johnson

The late activist and writer Joseph Beam once deemed the act of a Black man loving another Black man a “revolutionary act.” I imagine that doing so, while also living unapologetically with HIV, is doubly insurgent. But that’s perhaps the only way to describe the life and work of George M. Johnson. A writer, activist, and soon-to-be author, he’s committed to the work of toppling the patriarchy, challenging anti-Blackness, and confronting homophobia, transphobia, and HIV stigma wherever he sees it.

With over 40,000 Twitter followers and a much larger community that reads his words at Teen Vogue,Entertainment Tonight, The RootEbony, and countless others, Johnson is outspoken and defiantly visible as a Black gay man living with HIV, with which he was diagnosed at 25. Now, he’s set on being the resource he wishes he had when he was younger for other folks who are or might become HIV positive.

On National Black HIV/AIDS Awareness Day, Out spoke to Johnson about his activism, the state of HIV advocacy, and what those living with the virus and those not can do to combat stigma.

Read the full article/interview here.

Five ways to flip the script on HIV

From HIVplusmag.com

According to the Centers for Disease Control and Prevention’s 2017 HIV Surveillance Report, African-Americans represent 41 percent of new HIV diagnoses yet comprise only 12 percent of the U.S. population. In 2018, an article in Journal of Racial and Ethnic Health Disparities offered a five-point “action plan” for community leaders to address and reduce that disparity.

Be Immersive: Although the authors don’t go as far as suggesting all efforts must arise from black communities, they do note the need for work to be done in collaboration with those communities, and for answers to these challenges to be culturally relevant to African-Americans. (Pointing to an “unavailability of access to HIV healthcare and testing,” the researchers also call for “free or reduced-cost testing.”)

Be Nonjudgmental: The authors call for leaders and service providers to work to eliminate prejudices and unconscious biases that may interfere with HIV diagnoses and treatment. After all, they point out, some of the most-impacted populations are those who face stigma, including LGBTQ people, drug users, and those currently or formerly incarcerated. In particular, the researchers call out “cultural HIV/AIDS stigma” and “homo-negativity.”

Be Knowledgeable: The authors stress the importance of understanding “new approaches” to prevention and treatment—clearly referencing the recent consensus that undetectable equals untransmittable (U=U, which shows that once an HIV-positive person in treatment reaches viral suppression they are no longer at risk of transmitting the virus to a partner), and explicitly mentioning the use of pre-exposure prophylaxis (PrEP) as a highly effective barrier to transmission.

Be an Advocate: The authors want community leaders to become more vocal in calling attention to the epidemic and its impact on the black community. But that’s just the beginning. The action plan notes that much larger social issues must also be addressed in order to “eradicate secondary factors such as incarceration rates, poverty, STDs, and other factors that increase the chances of contracting HIV.” Essentially, they are calling for intersectional activism.

Be Innovative: The plan says to be “proactive and create solutions that evolve with the times and the changing needs of the affected populations.” Certainly, that includes new technologies and treatments, but the authors also point to innovative programs such as Many Men, Many Voices (3MV), aimed at black men who have sex with men who may or may not identify as gay or bi, in which small groups talk about cultural, social, and religious norms; sexual relationship dynamics; and how racism and homophobia influence HIV risk behaviors.

UNAIDS warns that HIV-related stigma is preventing people from accessing HIV services

GENEVA, 3 October 2017—UNAIDS has released a new report showing how stigma and discrimination is creating barriers to accessing HIV prevention, testing and treatment services and putting lives at risk.

The report, Confronting discrimination: overcoming HIV-related stigma and discrimination in health-care settings and beyond, was launched by the Executive Director of UNAIDS, Michel Sidibé, during the Human Rights Council Social Forum. It shows that people living with HIV who experience high levels of HIV-related stigma are more than twice as likely to delay enrolment into care than people who do not perceive HIV-related stigma.

“When people living with, or at risk of, HIV are discriminated against in health-care settings, they go underground. This seriously undermines our ability to reach people with HIV testing, treatment and prevention services,” said Mr Sidibé. “Stigma and discrimination is an affront to human rights and puts the lives of people living with HIV and key populations in danger.”

Read the full article here.

Health insurance agency apologizes, reverses Truvada policy after HIV activists push back

From NBC News

Following outrage by HIV advocates after UnitedHealthcare sent a rejection letter to a patient seeking Truvada — denying him due to his “high risk homosexual behavior” — the insurer announced Friday it is changing its policy for the daily HIV prevention pill “effective immediately.”

“We apologize for the insensitive language appearing in the letter and regret any difficulty it caused. We have corrected our letters, removed the prior authorization requirement for Truvada and members can fill their prescription at the network pharmacy of their choice,” a spokesperson for the company wrote in an email to NBC News Friday night.

Image: Daily Antiretroviral Pill Found To Protect Healthy From AIDS TransmissionBottles of Truvada are displayed at Jack’s Pharmacy on November 23, 2010 in San Anselmo, California. Justin Sullivan / Getty Images

The monthlong controversy started with a pre-authorization denial letter sent to Thomas Ciganko, a New York man whose physician prescribed Truvada for Pre-Exposure Prophylaxis (PrEP). While the rejection came as a surprise, the stated reason was the real shock.

“The information sent in shows you are using this medicine for high risk homosexual behavior,” the letter, dated July 11, 2017, read. In the same paragraph, however, the letter listed an approved reason for taking the medication “to reduce the risk of sexually acquired HIV-1 infection in adults at high risk.”

Read the full article on NBC News online.